I am sad.
Since this last surgery I have a different kid. He is mean and opinionated and ornery. He is sad so much more.
His muscle tone has increased and he can't walk as well. In fact he would prefer to crawl.
I am sick to my tummy.
I can't stop crying.
Who do I take him to? Where do I go? How do I help him? This didn't happen last time
We have an appointment in the morning for a follow up scan. I have an appointment with his braces guy to see if he can help me get in to on of the rehab docs.
I am frustrated.
I feel VERY alone.
The "others" comments are bothering me
I am sad.
Tiptoemama@gmail.com
Mother to a five year old daughter who has cerebral palsy.
happyinholland@gmail.com
Mother to a six year old boy with Autism.
nevilleslosttoad@mstarmetro.net
Mother to a four year old boy who is currently undiagnosed
lukerin4@hotmail.com
Mother of an 18 month old girl who has schizoencephaly
ima-mom@hotmail.com
mother to two children with Asperger's and sensory issues.
www.specialneedsmom.com
mother of two girls with complex 1 mitochondrial disease
sumGC4me@gmail.com
Mother to a 2 year old boy born with gastroschisis & brain damage
lizsbmom@gmail.com
mother of a two year old girl who has spina bifida
nancy.brown05@gmail.com
mother of a three year old boy with cerebral palsy, hydrocephalus and low vision.
vanandlori@gmail.com
Mother of two micro-preemie girls born 4 years apart.
jesscaandrews@aol.com
Mother to a one year old boy who has chronic lung disease.
christensen.melissa@ymail.com
Mother to a six year boy with autism, and a 19 mo. old boy who is undiagnosed
kinhelpingkids@yahoo.com
mother to a 4 yr old with PVL,CP,CVI,SD and a 3 yr old with FAE & SID
gizmoisms@yahoo.com
Mother to a 4 yr old boy with CP, seizure disorder & hearing loss
angelcare1@charter.net
Mother to several adopted daughters who all have cerebral palsy
Annette4Clay@aol.com
Mother of a 24 year old boy who has cerebral palsy
Abby
mother of a daughter with 'short gut'
mother to three boys with autism, PDD-NOS, ADHD, and one undiagnosed.
hayngrl101@gmail.com
Mother of a daughter who has DiGeorge Syndrome
www.jbjohnsen.blogspot.com
mother to a 3 yr. old boy with PDD-NOS
lsmckay@q.com
Mother to a little boy at risk for PDD-NOS
8 comments:
I'm so sorry. I'm sick of "others" comments as well. I'm getting ready to post a big thing on Autism so my whole family can tell me I'm smokin crack and my child has no problems. Yeah, whatever. Try living with him.
I hope you get some kind of answers. I wish there was something I could do.
I know the feeling. It's o.k. to be sad. Every day doesn't have to be a happy day. I know...I have three on the spectrum...or whatever you want to call it and so days...it's o.k....to be sad.
I agree. It's okay to be sad. Even a good thing I think. Even so, I wish I could offer you some comfort. I wish I could show up on your doorstep with an armful of chocolate and chick flicks, and take you away from reality for a while. Right now, I don't have any suggestions for you, but I'll think on it. In the meantime, I'll pray for you. Hang in there, and know that you are loved.
I'm sorry. The rough days are so hard...I hope that you find some peace today. You'll be in my prayers.
ah man. those days stink. I'm so sorry! big loves sent your way.
My thoughts and prayers are with you! I hope things will get better for you and your family. Let us knwo if there is anything else you need at this difficult time!
Nancy, I'm so sorry. You are one of the strong ones... you will get through this. My thoughts are with you.
I'm so sorry you are feeling down today. I hope you get some good sleep tonight and feel better about things in the morning. Just remember to take one day at a time and be free to feel what you are feeling. You are dealing with a lot, and you are entitled to "bad days". Hang in there and let us know how it all goes.
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