First let me start by saying thank you. Thank you for creating a place where parents raising special needs children may come together. I honestly do not believe parents of "normal" children quite understand this journey we are on.
My name is Theresa and I am 38 years old. I have been married to my wonderful husband, Michael, for 20 years now. We laugh looking back as in our young naivety we both wanted six children and for me to be a stay at home mom. Oh boy was God listening a tad bit to much!
We have two biological daughters. "S" is 18 and blossoming into a beautiful and strong woman. She will graduate this year and holds down a full time job. On her one night off a week, she watches the babies so I can get out of the house for a few hours. Albeit they are asleep! "N" is 17 and this weekend will be enlisting into the National Guard. She lives on her own, works and attends high school and still keeping a 3.8 GPA. It has took her father and I a little while to understand her choice of life partners but hey we have to grow too!
Our lives changed when we received a phone call on Valentines Day of 2006. My husbands 15 month old godson was in the hospital after ingesting his parents stash of methamphetamines. I spent most of the night rocking him and crying. We decided then and there that "P" and his little sister "K" (two months old) would be coming to live with us. DFPS took custody of the babies the next day and on May 17 2006 they came to us. On March 7, 2007 we were granted Permanent Managing Conservatorship. Loosely means we have all rights to the children except for being able to adopt them.
"K" is now a 3 year old terror! Daddy has spoiled her rotten! So far she has been diagnosed with FAE and Developmental Delay. She also has Sensory Integration Disorder. Which all means she is usually the happiest little girl you would want. She has very limited speech ( the same as if she were 1). She also has a very high tolerance to pain, hot and cold. Example : Big brother pushes her into window sill. All I hear is a small cry so go to investigate. Blood everywhere and no two front teeth. The were pushed up into her gums. Now she will not have those teeth till the big ones grow in.
"P" has more diagnosis then letters in his name. To date we have : Periventricular Leukomalacia (PVL), Cerebral Palsy (CP), Cortical Visual Impairment (CVI), motor and vocal tics, Seizure disorder, Early onset Bipolar, Antisocial Behavior Disorder and waiting on the positive dx for schizophrenia. And what is this caused from? Yep you guessed it. Bio mom's drug use during pregnancy. What all this means is I have a very brain damaged and dysfunctional son. He currently can not go to school and we are looking into a teacher coming to the home. He no longer dresses himself or goes potty. He chokes continually and his speech is decreasing. He has to be supervised 24/7. If I go potty, he goes. If I do laundry, so does he. He has tried strangling his sister 4 times, self injures ie : black eyes, bruises, cutting himself with anything including his fingernails, bites till he bleeds, picks until he bleeds.
I guess the worst part is when every doctor he has looks at you and says they do not know what to do. That hurts because I need someone to help. I know they are with the different meds and our wonderful neuro has given me "carte blanche" when it comes to increasing dosages. I increase then call in to get script changed.
Sorry this was so long but trust me this doesn't even cover a part of our lives. I look forward to getting to know everyone here!