Monday, May 30, 2011

A whirlwind of emotions and triumphs

First, thank you to all who share your stories, it helps to know that we aren't alone. After finding out our son was diagnosed with pdd-nos earlier in the year, we then had him re-diagnosed and they concluded he was autistic. We met with a doctor from a practice called Intercept who diagnosed him autistic and they recommended we start him on Risperidone. So we started him with .25ml and we saw a major improvement the next day. We continued with the medication and bumped it up to 1.0ml. It has made a huge difference! He is more responsive, he has much better eye contact, he is not so clingy and he is saying more words.

We've been on it for two months and he is now maintaining this level and so we are curious what to do next. He will repeat words but does not know how to use them. He can barely put two words or even two syllables together. He also has figured out that we are giving him medicine through ice cream or his soy milk and now he is refusing to eat or drink and consequently is starting to revert. We've been reading a lot about the connection of vaccines to autism. We've read the Jenny McCarthy book and are pretty much convinced that something in the vaccine triggered autism in my son. My other son who is 20 months is also following the same path.

I'm sure you understand our grief and when I say our hearts aches, you understand what we are going through. Has anyone looked into alternative treatments? Does anybody believe that there is a connection to vaccines and autism. My son that is 20 months will soon have his 2 year check up and we do not want to get him vaccinated.

Thanks for listening.
Jake and Melyssa

Saturday, May 7, 2011

Happy Mother's Day to some of the strongest mama's I know!

I Am Going On A Journey

I am going on a journey,

Won't you come along?

I need someone to help me.

A person big and strong.

I'm walking on my journey

But my feet are very small.

Can you stand beside me,

And catch me if I fall?

At times when I can't keep up

With life and all its fears,

Can you put me on your shoulders

And wipe away the tears?

When the steps I take are not big enough

And it's hard for me to grow

I know I can depend on you

To let me take it slow.

I'm going on a journey,

Please, won't you walk with me?

I need someone who understands

The place where I should be.

I promise when the road is tough

And you want to turn back home.

I will hold your hand real tight,

So you won't feel so alone.

I'm going on a journey

I don't know where it ends,

But if we walk together,

We can always be best friends.

And when the journey's over

And we find where we should be.

I know that you will be so glad,

You took this path with me.

I'm going on a journey,

Please, won't you come along?

I need someone to guide me

A parent—big & strong

Friday, May 6, 2011


Does anyone currently seek care at the H.O.M.E clinic?? How is it?

Does anyone see/seen Dr. Carbone?  Is he as wonderful as his wife, Dr. Jolma???