tag:blogger.com,1999:blog-18175344202247691312024-03-04T20:07:31.045-08:00thru the tulipsA forum of friendship and support for parents and caregivers of children with special needs.tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.comBlogger341125tag:blogger.com,1999:blog-1817534420224769131.post-57465740344072947492014-01-19T13:11:00.001-08:002014-01-19T13:11:33.229-08:00Communications Disorders classrooms?Hi guys. I am looking for a new school set up. I have been feeling for years now that my son's placement in a public school life skills classroom was just not quite right. He has an intellectual disability and will not be able to keep up in a regular ed. classroom. I have been told that in our district either life skills or keeping up with regular education are our only choices. <br />
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Recently, it has become obvious that one of my son's main stumbling blocks is that he does not speak. He does use some sign language but he does not know enough to truly communicate and his apraxia makes it hard for him to sign correctly. He also has Proloquo2Go but doesn't like using it. I also feel that his teachers/aides/and therapists do not know how to help him learn to communicate. The teachers keep telling me that they don't know sign (my son's main form of communication) and learning it is a "personal goal"; which just sounds like, "I will get to it when I have time which is probably never". I actually really love his speech therapist but we just haven't made the progress we need to make and I feel it has more to do with his classroom environment than with his SLP. I also don't know how comfortable his SLP is with working with a little guy like my son who will not ever speak but is higher functioning. <br />
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All I know is that break down in communication is making him increasingly violent and angry. He has so much more that he needs to say and can't say it. I want to find a Communications Disorders classroom in northern Utah that he could attend. We live in Ogden but I am willing to figure out either moving or finding a way to get him there. I have tried Googling it with no success but I have heard that there are such things in SLC at least. I would even love to get him somewhere that uses sign language but since he does not have a hearing impairment this hasn't been a possibility yet. Does anyone have information that may help? I am desperate to find a better placement for my son with more emphasis on communication. Please, any information would help. Katiehttp://www.blogger.com/profile/17009411610367481193noreply@blogger.com4tag:blogger.com,1999:blog-1817534420224769131.post-63030956258554347872012-12-12T08:28:00.000-08:002012-12-12T08:28:03.504-08:00updateI'm writing mostly to sound off but to also ask for any tips or tricks... My daughter is 11 and this year because we moved out of state (for a few years) we decided to home school her because of the big changes and hopefully get her stabilized. There were a few reasons for this- the primary one being that the 5th grade is at the middle school and I just couldn't fathom sending her to a school where she would have seven different subjects and a different teacher for each one.<br />
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The thing is, now that she has been home, she is a different kid. Her neuropsych said she qualified for an ASD diagnosis in 2011 and I agreed. She was in her own little world, very egocentric, and very little interest and interaction with family members unless she wanted something from the interaction (toy, cookie...). In the past few months, she has started to take the initiative to do a task just because it needs to be done. For example, the baby was fussing in his high chair so she picked up his bowl and spoon fed him. When he crawls on the table, rather than just ignore, she goes to him and gets him down. She also has begun to play with him.<br />
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I realize that these changes could be due to maturation.. but a small part of me wonders if its because she doesn't have the constant academic stress of social stuff within a group of typical peers and she is not stressed due to constant confusion over the academic load... do you have any thoughts or opinions on that?<br />
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On another note, my four year old is still lagging behind. I can't put my finger on it, but he is not 'growing out' of his issues. He is struggling with toileting and is mischievous to the point that its becoming a serious problem. We are in a constant state of mess due to his shenanigans... dumping out cheese powder and noodles from a box of mac and cheese was the latest thing he did early this morning. I think I need to find a good OT who can sort out his issues and give me a program to follow to give this child the stimulation he needs to that he is not 'acting out'. I suspect he has low registration and needs proprioceptive input to his upper extremities... but now I am thinking I need to add 'praxis problems' to his list of things. Sorry for all the jargon.. its what a coworker (OT) told me about him...kshttp://www.blogger.com/profile/12201064701178458053noreply@blogger.com2tag:blogger.com,1999:blog-1817534420224769131.post-58598650634739886082012-09-27T07:37:00.001-07:002012-09-27T07:37:31.420-07:00Good Pediatricians in the SLC area?I have a friend who is working with a family in SLC. This family has a child who is not diagnosed but has some major medical issues. The child seems like they possibly are on the autism spectrum, low tone, and non verbal. They are in desperate need of a really good pediatrician. I completely adore my son's pediatrician but when they called they found out that our doctor will not be taking any new patients in the foreseeable future. This family needs a doctor that can really lead them. The family is not experienced with this sort of thing and they do not know how to find their rights and answers to their child's problems. Let's help them out!Katiehttp://www.blogger.com/profile/17009411610367481193noreply@blogger.com6tag:blogger.com,1999:blog-1817534420224769131.post-81289233035842763752012-09-16T11:28:00.001-07:002012-09-16T11:28:37.660-07:00School troubleMy son is 6 years old. He is in first grade and goes to a life skills classroom. We loved his teacher from last year. I felt that he was really learning and growing. She was supposed to be his teacher again this year but during the summer she left the school so he has a new teacher. I have been feeling uncomfortable with this teacher. I chose to put my child in the life skills class because all of the other public school options said that he would have to learn at the speed of a regular classroom. He is unable to keep up with the typically developing kids his age when it comes to learning. The life skills classroom is supposed to teach him at his speed. However, with this teacher, I feel that he is being taught at a much lower level. I am under no illusions, my son is intellectually disabled, but I still want him to be pushed to learn as much as possible and be as educated as he can be. To be fair, I am in school as well and I haven't been able to stay for a whole day or anything to see what exactly they do. The teacher sends me notes saying what they did that day and although there are times that she mentions one or two academic areas, most of it is popcorn parties, PE, recess, etc. I have been there for the last hour of class (once), last half hour of class (multiple times) and I have not seen them do anything but watch an "educational" video in that last hour. This worries me to no end. I have been trying to figure out what I am going to do. I don't know who to talk to, what my options are, nothing! So while I was trying to figure out my next step another problem has arisen. My son has had 3 accidents (wet his pants) while at school this week. This is REALLY abnormal and we haven't had any trouble at home. When I have asked him about it, he says he is embarrassed, frustrated, and mad. When I ask why he didn't go he says he was scared. If I press he says he isn't afraid of the bathroom, anything in the bathroom, or anything on the way to the bathroom, he says he is afraid of <i>asking</i> to go to the bathroom. This has never been a problem in the past. By this point, I spoke to the interning principal. He said he and the actual principal have been spending every day, almost all day, in her classroom this past week to "support the teacher and help her get started". Something that felt wrong and threw up red flags for me because it is a month into school. Shouldn't they have done that in the first week or two? Have other parents complained? Throughout the weekend, as I have pressed further, my son started crying and saying "bo" (sound of a gunshot, and his name for his Kindergarten teacher, Mrs Gunn). I have asked him if he wants to get another teacher but he pretty much says if he can't have Mrs. Gunn, he doesn't want anyone. I don't know what to do, who to talk to, and what my options are. I am sure that this teacher is a perfectly nice teacher, but I do not feel she is right for my son. He needs someone he connects with better and someone who will push him to learn. Katiehttp://www.blogger.com/profile/17009411610367481193noreply@blogger.com3tag:blogger.com,1999:blog-1817534420224769131.post-35927179358266478822012-09-16T11:04:00.002-07:002012-09-16T11:04:31.612-07:00Proloquo2goMy son has been using Proloquo2Go for quite a few months. I hate all of the voices. They are too old! He is only 6. All of the American voices sound so robotic. And when you raise the pitch of the voice to get it to sound more "child like" it gets worse. I want my son to have a more normal child like voice for this app. There is the option to download more voices but when I go to that it only gives me one more FEMALE American voice. All the rest are British or Indian. Has anyone found another way to download a new voice? I just want a male child voice with an American accent who does not sound completely robotic. Is that too much to ask?Katiehttp://www.blogger.com/profile/17009411610367481193noreply@blogger.com4tag:blogger.com,1999:blog-1817534420224769131.post-52112448114026095582012-09-03T15:52:00.001-07:002012-09-03T15:52:56.027-07:00Kangen WaterHi,<br />
Our last post was about a GAPS diet we were trying. It worked pretty well for two weeks but we got hit hard with RSV season and went into survival mode. We decided to put the diet on hold as it was to much to manage. I still want to do it but it might be something we try next year. <br />
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But I did want to write about something cool that we have discovered and it has definitely improved our lives. We came across Kangen water. <br />
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"Kangen Water® is healthy drinking water rich in minerals, purged of impurities, and ionized through electrolysis. Alkaline ionized Kangen Water® is an excellent choice for healthy hydration. Not only does it taste great and refreshing, but it also helps you avoid impurities AND save money!" copied from <a href="http://www.drinkfancy.com/">www.drinkfancy.com</a>.<br />
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So I went to a demonstration and my boys started drinking the water. They just gulped it down like it was nothing. That night, they slept through the night. The next night, they slept through the night. Since then, they have probably slept throught the night about 90% of the time. Our 2 year old Max, he use to wake up and want milk about 3-5 times in the night. Now, he may wake up once and ask for milk but we don't give it to him. Max was just barely diagnosed with aspergers. <br />
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Cohen who is 4 and diagnosed with autism, he's done pretty well at sleeping but this definitely helped. One of the videos that I watched talked about how drinking plenty of water will help the brain produce melatonin and that you should be drinking half your body weight in ounces. I try to drink about 100 ounces a day. <br />
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Anyways, I thought I would pass this info on. The person who gives this water away, yes gives it away, is really nice and has not pressured us one bit into buying a machine. She is located in North Salt Lake. Check out her site <a href="http://www.drinkfancy.com/">www.drinkfancy.com</a>. I've posted more about this on our site <a href="http://www.lifeandhopewithautism.com/">www.lifeandhopewithautism.com</a><br />
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JakeWildthreeplus2http://www.blogger.com/profile/17134290350741761098noreply@blogger.com3tag:blogger.com,1999:blog-1817534420224769131.post-65657706633482332922012-04-13T20:23:00.003-07:002012-04-13T20:39:52.409-07:00New diet - Book - New adventureHi, its been a while since we last posted. Life is crazy busy and never lets up. We came across a book called Gut and Psychology Syndrome (GAPS). It is written by a doctor in England who cured her son from Autism through a diet. After listening to a podcast of an interview of her it all made so much sense. Basically she talked about changing the diet to all non-processed foods, organic fruit and vegetables and natural meat. The first stage is mainly broth from meat and vegetables, and then adding in food as the body is ready for it.<div><br /></div><div>So we started this diet about two weeks ago and it has been very rough and expensive. But we have seen a lot of improvement in our 4 year-old autistic son. It has been the simple things that we have noticed like jumping with both feet, picking up a book and reading it, trying to talk more, more independent, and better coordination. So it has been really cool to watch.</div><div><br /></div><div>The diet at first was very hard and we are not living it to the letter of the law with him but he is eating about 90% of what we give him. Which before that it was hot dogs, cheese tacos, Doritos, and other junk food.</div><div><br /></div><div>The first few days we basically had to starve the kids until they would eat what we had made. We decided that we had to be a little more flexible with our two year old, mainly because he is so stubborn and we only have so much energy. </div><div><br /></div><div>The basis of the diet is to heal the gut. You are suppose to do the diet for two years and then you should be able to digest food properly. I encourage you to check into it. We have a bunch of links on our site.</div><div><br /></div><div>We also published a book on Amazon. It is by my 6 year old daughter. Its called "My Autistic Brothers." Its available on both Amazon and Kindle. You can find it on our site. <a href="http://www.lifewithpdd-nos.com">www.lifewithpdd-nos.com</a> </div><div><br /></div><div>I must give a big shout out to my wife. She is amazing!! I'm sure most of you reading this are women and I have to give props to you all because I know the from my wife's experiences being a mother of an autistic child or one with any other disability is tough. You all deserve a million dollars, per year.</div><div><br /></div><div><br /></div>Wildthreeplus2http://www.blogger.com/profile/17134290350741761098noreply@blogger.com4tag:blogger.com,1999:blog-1817534420224769131.post-87748737163939533312012-01-06T00:06:00.000-08:002012-01-06T00:06:50.700-08:00Dad's Point of ViewI just wanted to let anyone and everyone know that my husband decided to start a blog about raising special needs kids from a Dad's point of view. <br />
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I hope he can connect with other dad's, so he will feel like someone out there understands. But it's good for anyone to read. It's always nice to be reminded what a Dad's point of view is. Pass this along to any special needs families' you know... or just anyone who might be interested!<br />
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<a href="http://www.scmc0310.blogspot.com/">www.scmc0310.blogspot.com</a><br />
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Enjoy!!Melissahttp://www.blogger.com/profile/17986134596025619230noreply@blogger.com2tag:blogger.com,1999:blog-1817534420224769131.post-60086485079312895982011-12-21T17:38:00.000-08:002011-12-21T18:06:36.542-08:00Dynavox anyone?So we went to an evaluation thinking we were going to come out being told to either buy an ipad or an itouch. They spent the entire time mildly outraged that anyone would suggest such a thing. They had a salesman there to give me the shpeal on Dynavox Maestro. <div><br /></div><div>I have to admit, the first time he took the thing and bashed it on the table they kinda had me. </div><div><br /></div><div>Pros about the Maestro compared to ipad:</div><div><br /></div><div>Dedicated to speech, made by speech pathologists so it is easy to use</div><div>The therapist said it is 10x easier to program and to use than the ipad</div><div>Has camera, internet, and many of the great things the ipad has</div><div>Our current insurance will pay for all of it</div><div>Very durable</div><div>Has 1 year warranty</div><div>Can pay for warranty after that (although it is $300-$500 a year)</div><div>From 8-5 I will have tech support</div><div>They come to your home and school to teach everyone how to use it.</div><div>It uses PECS pictures (unless I choose to change them)</div><div><br /></div><div><br /></div><div>Cons about Maestro compared to ipad:</div><div><br /></div><div>Someday we will have different insurance and even if it pays 80%, the Maestro is $7,000...that's still a lot</div><div>The ipad has about 1 million apps that at some point Josh will want to use (unrelated to speech) and although the Maestro is essentially a computer (PC) and you can do just about anything on it you can on a computer...it isn't an ipad</div><div>It is 3.5 lbs (and when you are only 36 lbs, that is a big deal)</div><div>It is thicker than an ipad</div><div>We will still have to pay for the warranty which is like buying an ipad once a year</div><div>His teachers are used to using ipads, not Dynavox. (Although the guy will teach them)</div><div><br /></div><div><br /></div><div>That is all I can think of right now. I went ahead and signed up for the Maestro with the understanding that I can call it off in the next few months without losing anything.</div><div><br /></div><div>Do any of you have any experience with any of this? What do you guys think?</div><div><br /></div>Katiehttp://www.blogger.com/profile/17009411610367481193noreply@blogger.com2tag:blogger.com,1999:blog-1817534420224769131.post-43300672491530320112011-12-11T13:25:00.000-08:002011-12-11T13:25:34.194-08:00Love That Max: A simple way to help another family this holiday s...<a href="http://www.lovethatmax.com/2011/12/simple-way-to-help-another-family-this.html?spref=bl">Love That Max: A simple way to help another family this holiday s...</a>: A reader, Lynne, shared the below letter with me, which she'd sent to her local radio station, The Point 97.1 in Las Vegas, for their "Holi...Anonymoushttp://www.blogger.com/profile/08008275331445301888noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-1206514174736466342011-10-23T21:58:00.000-07:002011-10-23T21:58:06.059-07:00Please Come!<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLutiNyWi1a_y_BAb7kdtVulwuCVXf8AioWsHKWXi6ilIBkgNdq6vjWt5Os1DpA19dZeJAW7I66ii_dFHQFgkrd3VO_ZxB9xXNk-JfnF7yEtmaYLp9ryjQsramEtrtyCf8_bHloi-3aR0/s1600/C-SLC.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" rda="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLutiNyWi1a_y_BAb7kdtVulwuCVXf8AioWsHKWXi6ilIBkgNdq6vjWt5Os1DpA19dZeJAW7I66ii_dFHQFgkrd3VO_ZxB9xXNk-JfnF7yEtmaYLp9ryjQsramEtrtyCf8_bHloi-3aR0/s1600/C-SLC.jpg" /></a></div><div align="center">If you have any questions please email me :)</div><div align="center"><a href="mailto:Jesscaandrews@aol.com">Jesscaandrews@aol.com</a></div><div align="center"><a href="http://www.fourinthefam.blogspot.com/">http://www.fourinthefam.blogspot.com/</a></div><div align="center"></div>Jessicahttp://www.blogger.com/profile/05186105693175131337noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-74029282799420196312011-10-23T16:20:00.000-07:002011-10-23T16:20:08.529-07:00Theology of DisabilityHello all, I received an email from Tera at the 'Kidz' blog. There is a student from Hampshire College in Amherst, MA who is doing her thesis on the LDS theology of disability. She is looking for parents of special needs kids to interview. While she is primarily focusing on the LDS view, she is also looking for parents of other faiths. She is not LDS herself. It is a very intriguing project. You can read more about it on her blog <a href="http://anneathampshire.blogspot.com/">here</a>. Even if you don't want to participate, it may be interesting to follow her blog to see what she finds out. She explains it much better than I do. If you are interested, the best way to reach her is at kohleranne@gmail.comtiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-25396993889340410792011-10-19T07:56:00.001-07:002011-10-19T07:58:15.137-07:00Hey everyone. I am looking to take Mason in to get a thorough vision screening done, but I don't feel like I can take him to just any optometrist. It needs to be someone patient, good with children, and able to help a child who may not respond well to the "normal" routine of an eye exam. Have you taken your kids anywhere? Who do you recommend? I am looking preferably in Weber/Davis county, but I can travel a little if necessary.<br /><br />Thanks!Happy in Hollandhttp://www.blogger.com/profile/17240190503527497219noreply@blogger.com3tag:blogger.com,1999:blog-1817534420224769131.post-42070301176491056862011-10-12T15:51:00.002-07:002011-10-12T15:51:59.847-07:00Special Needs Dance ClassJust wanted to let you all know that the FREE special needs dance class is starting up again in Hooper. There is a one time $10 registration fee. They meet at 5:15 on Wednesday nights at the Dance Image Studios <span class="black11_lh">5495 S. 5900 W. </span>( right across the street from Hooper Elementary. ) MK was in the class last year and REALLY loved it. Any age, and any ability is welcome. Spread the word.<span id="goog_1610316914"></span><span id="goog_1610316915"></span>tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-66333759777142153972011-10-12T15:51:00.001-07:002011-10-12T15:51:46.185-07:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikxypWCPXDYel2b-6TshTYUIBvflh-0cCe3RjX57vOnGPBqs2utXO3FhciZldvgR2dBdtauu9VYXgLCv-ZNUd6kLd3yXqcYLDzJUAXbUrVLeOUP0Xt8T7B-w3VhYMnlGzcqbBJLxdR8ZYC/s1600/IMG_1095.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikxypWCPXDYel2b-6TshTYUIBvflh-0cCe3RjX57vOnGPBqs2utXO3FhciZldvgR2dBdtauu9VYXgLCv-ZNUd6kLd3yXqcYLDzJUAXbUrVLeOUP0Xt8T7B-w3VhYMnlGzcqbBJLxdR8ZYC/s320/IMG_1095.jpg" width="213" /></a></div>
<br />tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-45473740415940322722011-09-11T17:44:00.000-07:002011-09-11T17:44:52.196-07:00<span style="font-family: Georgia, "Times New Roman", serif;"><em>Hi mom's! I am starting a support group for special needs families with the help from my friend, who is also an SLP who just left Pingree! (she is donating talents to us!!!) I am very excited because I feel like it is something that is needed in the area. I know there are many support groups on the web, but I feel like as mom's and dad's we need to get out and mingle with other parents who are dealing with similar situations. (our kids need the interaction too)</em></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><em>I get many phone calls from new mommies who are being tossed into "Holland" with nothing. They need to know where to "check in" So... here I go. On a new mission to share the knowledge that I have obtained and to open my arms and invite those who feel like they too have something to share, learn or even better.. both!</em></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><em> I am working on venues and would love to know who would be interested in joining the group and in which city you hale from. This will be so fun and so wonderful to FINALLY get to meet! So... Please let me know if you would be interested in this! As you know support groups only work if there are others to support you in the journey!</em></span>Jessicahttp://www.blogger.com/profile/05186105693175131337noreply@blogger.com4tag:blogger.com,1999:blog-1817534420224769131.post-36886422552292531242011-09-06T20:18:00.000-07:002011-09-06T20:35:37.243-07:00Autism SchoolHi, again. <div>We had some great news over this last summer and that is our son was accepted to the Pingree School for Children with Autism. We were so excited and thrilled for this opportunity. His first day was last week and although he couldn't really tell us much he seem to share his excitement in his facial expressions. <div><br /></div><div>I get to drop him off every morning at the bus stop and he is so excited when the bus arrives. We are so grateful for this school and how they are helping him. The teachers have been great and he has had great progress in eating. They will start potty training him this month which is awesome. It has been so nice for my wife to have a little break and spend time with our two year old. </div><div><br /></div><div>Lately I've been reading this book called Healing and Preventing Autism by Jenny McCarthy and jerry Kartzinel. It has been a fantastic book. We are looking to try some nutritional supplements and I was wondering if anyone has tried anything before. They say that one of the problems is the yeast build up in the stomach and that if you can get rid of that and help their immune system to operate better this can lessen some of the autistic characteristics. So its worth a try in my mind.</div></div><div><br /></div><div>Well, I hope everyone has a great month. We are also continuing to raise money for our son's education at Pingree, so if you are able to contribute a little that would be great. But don't worry if you can't because I can guarantee that just about everyone has a lot of medical bills. Our site is <a href="http://www.lifeandhopewithautism.com">www.lifeandhopewithautism.com</a> and <a href="http://www.lifewithpdd-nos.com">www.lifewithpdd-nos.com</a>. I keep them both updated with the same content.</div>Wildthreeplus2http://www.blogger.com/profile/17134290350741761098noreply@blogger.com1tag:blogger.com,1999:blog-1817534420224769131.post-84801529081650596742011-07-06T15:55:00.000-07:002011-07-06T16:01:20.038-07:00family fun for a good cause!!!<span style="color: rgb(204, 51, 204);font-size:85%;" >hello all. Just got this email I'd like to pass along. For those of you who may not remember, <a href="http://thruthetulips.blogspot.com/2010/07/good-things.html">Chloe's sunshine playground</a> is the 'all abilities' playground they are trying to build in Syracuse:</span><br /><br />A 5k and motorcycle rally are being held at The Gallivan Center in <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1309992759_0">Salt Lake City</span> <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1309992759_1">on August 6th</span>. If you register to participate, you can select to sponsor <a rel="nofollow" target="_blank" href="http://www.thenochildleftoutproject.blogspot.com/">Chloe's Sunshine Playground</a><a href="http://www.thenochildleftoutproject.blogspot.com/">,</a> and 100% of your donation will go to help our cause!<br /><br /> <div>The day includes all the events mentioned above along with a Special Kids Fair, live music all throughout the day, retail vendors, great food and drinks, and much, much more. The day begins with sign-up and registration for the 5-K and motorcycle rally at 7:00 am, with both starting promptly at 9:00 A.M. The Kids Fair, music and vendors are scheduled to open immediately after the start of the 5K. Everyone is invited to come and spend the day in downtown <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1309992759_2">SLC</span> having as much fun as you can find, while helping worthy causes. Also, tons of prizes will be given away throughout the day. The cost is only $10.00 per adult with kids under 10 admitted free.</div> <div> </div> <div><a rel="nofollow" target="_blank" href="https://events.regtix.com/childrenandtheearth.htm?xnocache=true"><span style="font-size:130%;">Go here to register.</span></a></div><br />Please put it on your calendars, come if you can, and help spread the word! Thanks so much for your support.tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com1tag:blogger.com,1999:blog-1817534420224769131.post-69476216176713874762011-05-30T20:00:00.000-07:002011-05-30T20:13:24.616-07:00A whirlwind of emotions and triumphsFirst, thank you to all who share your stories, it helps to know that we aren't alone. After finding out our son was diagnosed with pdd-nos earlier in the year, we then had him re-diagnosed and they concluded he was autistic. We met with a doctor from a practice called Intercept who diagnosed him autistic and they recommended we start him on Risperidone. So we started him with .25ml and we saw a major improvement the next day. We continued with the medication and bumped it up to 1.0ml. It has made a huge difference! He is more responsive, he has much better eye contact, he is not so clingy and he is saying more words. <div><br /></div><div>We've been on it for two months and he is now maintaining this level and so we are curious what to do next. He will repeat words but does not know how to use them. He can barely put two words or even two syllables together. He also has figured out that we are giving him medicine through ice cream or his soy milk and now he is refusing to eat or drink and consequently is starting to revert. We've been reading a lot about the connection of vaccines to autism. We've read the Jenny McCarthy book and are pretty much convinced that something in the vaccine triggered autism in my son. My other son who is 20 months is also following the same path. </div><div><br /></div><div>I'm sure you understand our grief and when I say our hearts aches, you understand what we are going through. Has anyone looked into alternative treatments? Does anybody believe that there is a connection to vaccines and autism. My son that is 20 months will soon have his 2 year check up and we do not want to get him vaccinated.</div><div><br /></div><div>Thanks for listening. </div><div>Jake and Melyssa</div><div>www.lifewithpdd-nos.com</div><div><br /></div>Wildthreeplus2http://www.blogger.com/profile/17134290350741761098noreply@blogger.com5tag:blogger.com,1999:blog-1817534420224769131.post-25249965255822126222011-05-07T17:28:00.000-07:002011-05-07T17:28:20.129-07:00Happy Mother's Day to some of the strongest mama's I know!<strong><u><span style="font-size: large;">I Am Going On A Journey</span></u></strong><br />
<br />
<br />
I am going on a journey,<br />
<br />
Won't you come along?<br />
<br />
I need someone to help me.<br />
<br />
A person big and strong.<br />
<br />
I'm walking on my journey<br />
<br />
But my feet are very small.<br />
<br />
Can you stand beside me,<br />
<br />
And catch me if I fall?<br />
<br />
At times when I can't keep up<br />
<br />
With life and all its fears,<br />
<br />
Can you put me on your shoulders<br />
<br />
And wipe away the tears?<br />
<br />
When the steps I take are not big enough<br />
<br />
And it's hard for me to grow<br />
<br />
I know I can depend on you<br />
<br />
To let me take it slow.<br />
<br />
I'm going on a journey,<br />
<br />
Please, won't you walk with me?<br />
<br />
I need someone who understands<br />
<br />
The place where I should be.<br />
<br />
I promise when the road is tough<br />
<br />
And you want to turn back home.<br />
<br />
I will hold your hand real tight,<br />
<br />
So you won't feel so alone.<br />
<br />
I'm going on a journey<br />
<br />
I don't know where it ends,<br />
<br />
But if we walk together,<br />
<br />
We can always be best friends.<br />
<br />
And when the journey's over<br />
<br />
And we find where we should be.<br />
<br />
I know that you will be so glad,<br />
<br />
You took this path with me.<br />
<br />
I'm going on a journey,<br />
<br />
Please, won't you come along?<br />
<br />
I need someone to guide me<br />
<br />
A parent—big & strongJessicahttp://www.blogger.com/profile/05186105693175131337noreply@blogger.com1tag:blogger.com,1999:blog-1817534420224769131.post-22509364660209416102011-05-06T18:53:00.000-07:002011-05-06T18:53:43.003-07:00QUESTIONDoes anyone currently seek care at the H.O.M.E clinic?? How is it? <br />
<br />
Does anyone see/seen Dr. Carbone? Is he as wonderful as his wife, Dr. Jolma???Jessicahttp://www.blogger.com/profile/05186105693175131337noreply@blogger.com2tag:blogger.com,1999:blog-1817534420224769131.post-25379305160085907112011-04-30T17:12:00.000-07:002011-04-30T17:16:08.308-07:00autism resource.Hello. I am one of those nerds who listens to talk radio all the time. (It's just about the only adult conversation I ever get) anyway, I was listening to KSL in the car the other night as they were talking about autism awareness month. They talked about a group called "Big Maks" which stands for "Mothers-with-Autistic-Kids" <a href="http://www.utahmaks.blogspot.com">They've got a blog</a>. It looks really cute and fun. I tried to remember it so I could share it with those of you here who might enjoy it. I'll also link the blog in the sidebar.tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com1tag:blogger.com,1999:blog-1817534420224769131.post-71612961841511871652011-04-23T08:53:00.000-07:002011-04-23T08:56:54.610-07:00Hey everybody,<br />I got an e-mail from a sweet little entrepreneur. Her name is Haileigh. She is only 11 years old and has severe hearing loss. For any of you who have hearing impaired kids - she has created her own business of making and selling charms and tube twists to adorn hearing aids. They are really beautiful. She asked me if I could let you all know about it. <a href="http://www.HayleighsCherishedCharms.com">Check out her website here.</a> And Good Luck to you Haileigh! We are impressed with your ambition!tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-73666424491631820212011-04-23T08:49:00.000-07:002011-04-23T08:57:45.280-07:00Tiptoe thru the tulips...togther! (open invitation)<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://kidzorg.blogspot.com/2011/04/tulip-festival-open-invitation.html"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 400px; height: 286px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzvDLom-3B8naoit3A6JWgfk3D-QWdK9DGc92h__F_OmswFpN6-ledAomU4mcc-YiliQyv2cqE2kdhFczkhEbgw087qOLuqstnnFfILARtMCECEpN385ure7G6P0U-Xu0PUf07FpdXk34a/s400/tulip-festival-invite.jpg" alt="" id="BLOGGER_PHOTO_ID_5598806749002925154" border="0" /></a>I got an e-mail from Tara at <a href="http://www.kidzorg.blogspot.com/">"Kidz"</a> about this special event. It looks awesome. She is trying to get a special group rate for all of us 'in Holland' to go to this together. click on the picture to check it out! (If you are interested in going as a group with other special needs families, RSVP to Tara!) and feel free to pass on the invitation to anyone else you know!tiptoe mamahttp://www.blogger.com/profile/01809154050148418788noreply@blogger.com0tag:blogger.com,1999:blog-1817534420224769131.post-90186078524302917512011-04-13T13:10:00.000-07:002011-04-13T13:14:12.779-07:00Ogden Area Autism Meeting TONIGHT!Hey Ladies! I know it has been a while since I have checked in here---as with everyone else, life is CRAZY busy right now. I did want to put a quick post in to let everyone know about the first FAAST (Families of Autism and Aspergers Standing Together) Meeting in the Ogden area happening TONIGHT at 5:00pm at West Haven Elementary School. This is a new group being formed to help families affected by autism come together and find support. This couple is awesome--they are making things happen, and I know good things will come from this. Check out the info at <a href="http://www.faastutah.weebly.com/">www.faastutah.weebly.com</a> or follow them on their facebook page. I hope to see some of you there tonight!Happy in Hollandhttp://www.blogger.com/profile/17240190503527497219noreply@blogger.com0