Marshall has RSV so we've been busy around here. We think he's on his way up but he has been coughing a ton!!! Well, the doctor's nurse said we can go to the Draper Temple Open House tomorrow and that he shouldn't be contagious but I took him for a walk around the block and I had to carry him the last half of the block because he was coughing so hard he couldn't walk. He doesn't slow down at all!! He still jumps everywhere and I think that wears him out too. Poor boy needs to get well.
Do you think it's RSV or the Flu? How would I know? Would you take him to places where he will be around other kids? Would you let him go to school Friday? I have the Cub Scouts Blue & Gold Banquet that I'm in charge of on Friday and I don't know what to do with him if he can't go!!!
He said such funny things to me today. Check out my personal blog, The Bucklein Bunch
Oh, and by the way, the eating issues are NOT getting better. Just like Marshall ALWAYS does, he got better for a while and now he's refusing to eat. He doesn't like Pediasure anymore and he threw up the other night because he didn't want to eat. I think this is going to take a lot more work than his therapist thinks!! He always ALWAYS ALWAYS cycles through different patterns of behavior. Gotta love it. No, I don't love it but I love him!
7 comments:
Hi Mom, What an adorable boy! Clay had RSV before his 1st birthday long, long ago so I don't know how it shows up for kids that are older. Feeding/eating issues can be forever in duration, but eventually answers come how to best work with the battles and the needed nutrition.....oh the memories I have of all that. I just wanted you to know I love your blog and I am a sucker for piano music...the sound so beautiful when I clicked on to read it...never got to take lessons, but I do so love piano......soothing to my soul. I hope that Marshall begins to feel better soon. Follow your heart about how to handle Friday.......regardless your decision, everything will be okay. Take care of your adorable family to the best you know how......that is all any one of us moms can do on our on initiative....then pray, pray, pray for wisdom and strength and all other things beyond our immediate understanding.......hugs from South Carolina.
I just wanted to thank you for "introducing"me to your friend. I am so glad that I can have a go to person. Thank you!
If you have any questions about RSV let me know this is a hot topic for me.I have done much research on it. I hope he starts feeling better soon. I was talking to our speech Pathologist and she was telling me that sometimes they use steroids to help stimulate an appitite so that the child will eat. (I don't know how you feel about that but just a suggestion)
We've tried an appetite stimulator and it never worked. Right now we're trying to get his reflux under control. Thanks for thinking of me.
I do have some questions about reflux though and I want to talk to you more about it but I'm about to run out the door to another meeting (BUSY day!!!!). I have so much I need to write about feeding therapy today too. Hopefully I'll catch up later.
That terrible issue of nutrition, how to give it, how to keep it down, etc, etc, etc......reflux, reflex vomitting, refusal to suck, swallow, and / or chew........all so difficult to deal with. J-tubes, NG tubes, G-tubes, Fundal plycation (never remember how it was spelled..where is spell check when one needs it?).....I feel your frustrations.......I basically had to demand a gastrostomy around the age of 1, but by then the reflex vomitting had taken hold and he continually threw up all the time for a year or more before spiking a 107 temp after a medication to speed the emptying of his stomach while hospitalized during a 'reflux' eval......that is when the fundal surgery was then decided necessary.......so many things for such mamas to go through.....especially for our kids to live through. I pray for all your families living the nightmares of medical issues and the stresses that come with. I rejoice with you for the triumphs and happy, unexplainable 'mom' moments.....I always wish you blessings!
I hope he is doing better and things have improved!
Boy you have been through the ringer lately! I hope things get better with the eating. We often wonder how our oldest stays alive. Who do you go to for feeding therapy? ThaNks for referring people to me for special needs photography. It was so fun to shoot your family. Did you get the downloads to work?
IMA MOM- I haven't tried downloading yet because I had the Cub Scout Blue and Gold Banquet Friday (which I am in charge of) so I was going CRAZY!! I will try soon. I downloaded them to my desktop (some of them) before so I'm sure it will work.
I HIGHLY recommend the Primary Children's Rehab Sandy clinic. There is a Rehab clinic just down the street from me and I tried going there once but they are NO GOOD!! So now I drive 30+ min. each way to go to OT and Feeding Therapy. The SLP Marshall works with is the BEST!! Her name is Courtney. The only downside is she is only there on Thursdays. The other days I guess she is at PCMC but I don't think you can request people there..not sure. I am sure other therapists are great but Courtney got my son eating and that is no small feat!! Sure, he eats almost nothing now but he's TRYING. He even feels hungry sometimes. We're off Pediasure now too so that's great!
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