My son has a new look.... he is sporting a feeding tube now. I think is most cases this isn't the best sign possible, but for us we have welcomed it. I didn't realize until last night/early this am (whichever way you want to look at it) that his lack of eating and drinking had taken such a toll on me. The decision was made from the PCMC feeding clinic yesterday to finally take some action with his lack of intake and his constipation problem. So we went to the ER last night and had a NG tube put it, and a bowel cleanout. For the first time in a week I feel sooo much better. I know he is going to get his fluids now and we can work on the fear of drinking he has without getting to the point of hospitalization. So we'll go through the weekend and then on monday find out what else we need to do. Thank goodness for a wonderful OT with PCMC that was not comfortable with his nutrition at this point and got the ball rolling.