We are taking Josh to PCMC tomorrow to have his G-tube placed and some biopsy's done. It's his first overnight stay in the hospital since the NICU. So it could prove to be very interesting.
His chronic constipation issue has finally gotten to the point of medications no longer helping. So a surgeon is coming in with our GI doctor to do a full thickness biopsy of his colon. We'll see if we get some answers between that and hsi upper GI Endoscopy and biopsy's there as well.
So we hope to leave the hospital saturday with more answers. It's worth a shot, righ?
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Mother to a five year old daughter who has cerebral palsy.
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Mother to a six year old boy with Autism.
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Mother to a four year old boy who is currently undiagnosed
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Mother of an 18 month old girl who has schizoencephaly
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mother to two children with Asperger's and sensory issues.
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mother of two girls with complex 1 mitochondrial disease
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Mother to a 2 year old boy born with gastroschisis & brain damage
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mother of a two year old girl who has spina bifida
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mother of a three year old boy with cerebral palsy, hydrocephalus and low vision.
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Mother of two micro-preemie girls born 4 years apart.
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Mother to a one year old boy who has chronic lung disease.
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Mother to a six year boy with autism, and a 19 mo. old boy who is undiagnosed
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mother to a 4 yr old with PVL,CP,CVI,SD and a 3 yr old with FAE & SID
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Mother to a little boy at risk for PDD-NOS
3 comments:
Oh Melissa I have your whole Family in my prayers, It's tough to have to go through so much crap to get an answer. I hope indeed you get an answer,
Your friend, jessica
I'll remember you in my prayers...
I just love you guys. Good luck and give me a call when you need a distraction!
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