I am looking for some advice. Since the last post I did about Josh, we finally have a plan for him. I talked about a possible Nissan procedure as well as G-tube placement. His Dr. has decided that she doesn't want to wait 6-8 weeks for him to get the Nissan done, so we are just going with the G-tube for now. His reflux was much worse with his NG tube in, so once that is gone and a change in meds, we hope things will be OK.
So... now I am looking for any advice or help on G-tubes. Anything you have found to do or not to do. What type of clothing is the best? He is going to turn 2 on June 1st, so I have been wondering if he needs to wear onesies or not. I would assume he needs to have his tube covered, but I don't know a thing. Also, does anyone know how long of a hospital stay it requires? I am STILL waiting on the Hospital to call with his surgery date, but I am trying to decide what kind of arrangements I will need.
So please feel free to give me any or all advice you have... it would be very much appreciated!!