I said a silent little prayer on the way home from the ENT today because I know I have to be strong for my children. They can't see mom cry. We took our little six month old in today and when they took us into the sound proof booth to test his hearing it was everything I could do not to cry right then. I have been there so many other times with two other children but something about him being so tiny and fragile. When she said his name and he didn't turn his head something inside of me dropped. He has partial hearing loss and fluid in his ears, so we are off to Primary Children's right after the New Year. I have reservations about the anesthetic because he is so young. Out other son went in at nine months but was also a chunk compared to the wee one. They are also going to scope his nose for obstructions. I wonder will this effect his speech? Will he be delayed as our daughter was? Does anyone have any intervention ideas for helping with speech and hearing loss? What milestones should I be looking for? Anyone know where to get Signing Time videos at a reducecd rate?
Why is it not getting easier with each time we go through this? I am glad I know what to expect but why is it I still feel vulnerable as a mommy who loves her little ones SO much?!
Sister's tube is out and her neck is being observed for two weeks before they consider two surgeries on her. I am so grateful for prayer. I know these are HIS children not mine and they are in HIS hands.
Showing posts with label birth defects. Show all posts
Showing posts with label birth defects. Show all posts
Monday, December 22, 2008
Friday, December 19, 2008
Overwhelmed...
Okay right now I am being reminded why I am not a big fan of holidays. Any holidays. My oldest daughter has been crying all day because she already misses her teacher and is sad they're taking a "long winter nap." She thrives on routine so this next two weeks could get ugly. My other daughter is biting her sister because there was only one popsicle in the freezer. GO FIGURE...it is a blizzard outside and they are fighting over frozen food.
Last year we had just finished another ear surgery at Primary Children's on December 22nd and today we got some sobering news. I took three of us in to our family doctor and here are the results. Our six month old has his second ear double ear infection with fluid in the last month. He is recommending a specialist and surgery.
Our three year old has a congential defect we just found out about. A couple weeks ago a strange bump showed up on her neck. Come to find out all of the green goopy sinus infections and the bump are related. A cyst as a result of unclosed sinus passages???? Haven't researched this yet. Anywho, surgery number two and appointment number two with Mr. ENT, since it will never go away on it's own unless removed. Our four year old has an appointment with Primary Children's in January to get his genetic issue fixed, and yep...surgery. I am so sad for all of them because I know how traumatic this has been in the past and I know they are in pain.
I have my regular winter smoker's cough even though I've never touched a cigarette. The CT scan last year showed scar tissue on my lungs. So after a positive PPD (tuberculosis screen) and nine months of antibiotics through the health dept. I am here again hacking up a lung. But no worries you can't catch it. Asthma? Can't breathe? That would also be our five year old every winter. We catch any virus out there and take it to the tenth degree.
Family gatherings from three different sides with conflicting schedules, styles and agendas seem to bring an added measure of drama. It's not fun for me to sit in a room full of people and know that half of them genuinely dislike us/me. I find myself wish my family of origin was not reckluse or conlficted. I miss the traditions we had as a child and I miss the real spirit of Christ I want to feel now in my own home. Mix that with children who get overstimulated in loud settings and it can be interesting. Last week when we went out for a birthday dinner and my oldest son had a meltdown and started hitting me which made my mom mad...you can imagine the rest I'm sure.
So today I find myself singing "Where are you Christmas? I can not find you." Any ideas for where to pick up some Christmas cheer? I'm off to pick up our z-pack, omnicef, ibuprofen, mucinex and all expense paid trip from the pharmaceutical rep at Target.
Last year we had just finished another ear surgery at Primary Children's on December 22nd and today we got some sobering news. I took three of us in to our family doctor and here are the results. Our six month old has his second ear double ear infection with fluid in the last month. He is recommending a specialist and surgery.
Our three year old has a congential defect we just found out about. A couple weeks ago a strange bump showed up on her neck. Come to find out all of the green goopy sinus infections and the bump are related. A cyst as a result of unclosed sinus passages???? Haven't researched this yet. Anywho, surgery number two and appointment number two with Mr. ENT, since it will never go away on it's own unless removed. Our four year old has an appointment with Primary Children's in January to get his genetic issue fixed, and yep...surgery. I am so sad for all of them because I know how traumatic this has been in the past and I know they are in pain.
I have my regular winter smoker's cough even though I've never touched a cigarette. The CT scan last year showed scar tissue on my lungs. So after a positive PPD (tuberculosis screen) and nine months of antibiotics through the health dept. I am here again hacking up a lung. But no worries you can't catch it. Asthma? Can't breathe? That would also be our five year old every winter. We catch any virus out there and take it to the tenth degree.
Family gatherings from three different sides with conflicting schedules, styles and agendas seem to bring an added measure of drama. It's not fun for me to sit in a room full of people and know that half of them genuinely dislike us/me. I find myself wish my family of origin was not reckluse or conlficted. I miss the traditions we had as a child and I miss the real spirit of Christ I want to feel now in my own home. Mix that with children who get overstimulated in loud settings and it can be interesting. Last week when we went out for a birthday dinner and my oldest son had a meltdown and started hitting me which made my mom mad...you can imagine the rest I'm sure.
So today I find myself singing "Where are you Christmas? I can not find you." Any ideas for where to pick up some Christmas cheer? I'm off to pick up our z-pack, omnicef, ibuprofen, mucinex and all expense paid trip from the pharmaceutical rep at Target.
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