We went to our MRI appointment on Monday. We had one or two done before he was two and then we had another one in...I think it was November. The results were always the same. He has a lot of brain damage and scar tissue. They have been especially worried about the 3 and 4 ventricles because the scar tissue seems to be blocking them partially. Last time they said they didn't want to send us to a surgeon because a surgeons answer to anything is surgery. Makes sense. So we waited to see what would happen.
By the time I made it back home from the hospital, the radiologist had called my son's doctor who called us and the emergency contact and us again. He started out so benignly. "It's not good but it's not bad." Okay. It looks pretty much the same as the last one. But it isn't better. So waiting and seeing didn't do us any good. It might be a little worse. Hard to tell. But the point would be that the pressure didn't go down. Had I seen any seizures? Had I noticed him getting worse with anything? Was I sure? I don't know. He had seemed mostly normal I thought. As normal as he is. Here is the number for the Neurosurgeon.
Brain surgery. Next week we go in and find out just exactly what will happen. I figure wait and see is probably out of the question. We already did that and I guess it didn't work. Besides, how long do you wait if it could mean additional brain damage? We really can't afford to do that. So what's next? I have no idea. Next week can't come soon enough.
In the mean time I am slightly out of my mind. I cried for 3 hours straight the first day and on and off for the past 3 1/2 days. I can't remember anything, I can't do math, I can't sleep until I am out of my mind tired. This could be the craziest I have been since he got meningitis. Blah! Not knowing what will happen is killer. I would give just about anything to get in sooner but no can do. *sigh* Apparently no one cancels or postpones their appointments with a neurosurgeon. Go figure.