When we were in the NICU one of the last hurdles we had to cross was our eye exam and getting cleared from ROP. About 1,100–1,500 infants annually develop ROP that is severe enough to require medical treatment. About 400–600 infants each year in the US become legally blind from ROP.
Tyler is one of the 400-600 infants. He has amazing vision for the degree of ROP he has. While he is on the border of legally blind, he is considered to have low vision. He also suffers from nystagmus which makes his eyes constantly move and scan where he is trying to look. As a direct result from his surgery he has a coloboma as well. Though that doesn't seem to make much of a difference in his vision, it does make for a really cool eye.
When we moved to Arizona we lost our vision therapist but gained the foundation for blind children down here.
I was sent this from youtube that I thought I would share with you guys.
When we first moved here it was my life line. I met some wonderful women who attended the infant program. I am excited to send Ty back for their summer program. 3 weeks of vision geared activities. It is going to be great.
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3 comments:
Nancy- that is so great! I'm glad they have a program geared towards kids with vision issues. Isn't it great when we get hooked up with the right people/organizations. Ty is going to do well!
I'm always so amazed and so grateful for therapists, doctors, etc. all the many, many people around, who take interest in helping and taking care of special needs. I think most of us parents have been compelled to be a part of this world -- how amazing is it for others to choose it?!
Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
Karman S-Ergo 115
Keep Posting:)
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